Hayley Okines, Beloved Teenager Trapped In 104-Year-Old Body, Passes Away At 17 April 3, 2015. “My baby girl has gone somewhere better. She took her last breath in my arms at 9.39pm.”
The Big Run is 10 marathons in 10 days and the aim is to raise awareness and sponsorship for Progeria Family Circle (UK). This is a debilitating condition that causes the body to age at an accelerated rate and has dominated the young lives of 14-year old Hayley Okines and 13-year old Harry Crowther. In April 2012, Charlotte Okines, sister of Hayley, and her friend Becky Reid will run from Harry’s home in Yorkshire to Hayley’s home county of Kent – a total of 272 miles.
Free Book -Old Before My Time: Hayley Okines' Life with Progeria by Hayley and Kerry Okines, by Alison Stokes, Hayley Okines and Kerry Okines, is free in the Kindle store, courtesy of UK publisher Accent Press.