Hayley Okines, Beloved Teenager Trapped In 104-Year-Old Body, Passes Away At 17 ‎April‎ ‎3‎, ‎2015. “My baby girl has gone somewhere better. She took her last breath in my arms at 9.39pm.”

Hayley Okines, Beloved Teenager Trapped In 104-Year-Old Body, Passes Away At 17 ‎April‎ ‎3‎, ‎2015. “My baby girl has gone somewhere better. She took her last breath in my arms at 9.39pm.”

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The Big Run is 10 marathons in 10 days and the aim is to raise awareness and sponsorship for Progeria Family Circle (UK).  This is a debilitating condition that causes the body to age at an accelerated rate and has dominated the young lives of 14-year old Hayley Okines and 13-year old Harry Crowther. In April 2012, Charlotte Okines, sister of Hayley, and her friend Becky Reid will run from Harry’s home in Yorkshire to Hayley’s home county of Kent – a total of 272 miles.

The Big Run is 10 marathons in 10 days and the aim is to raise awareness and sponsorship for Progeria Family Circle (UK). This is a debilitating condition that causes the body to age at an accelerated rate and has dominated the young lives of 14-year old Hayley Okines and 13-year old Harry Crowther. In April 2012, Charlotte Okines, sister of Hayley, and her friend Becky Reid will run from Harry’s home in Yorkshire to Hayley’s home county of Kent – a total of 272 miles.

Free Book -Old Before My Time: Hayley Okines' Life with Progeria by Hayley and Kerry Okines, by Alison Stokes, Hayley Okines and Kerry Okines, is free in the Kindle store, courtesy of UK publisher Accent Press.

Free Book -Old Before My Time: Hayley Okines' Life with Progeria by Hayley and Kerry Okines, by Alison Stokes, Hayley Okines and Kerry Okines, is free in the Kindle store, courtesy of UK publisher Accent Press.

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This is Haley Okines, a girl with the disease progeria, which makes you age 8 times faster then usual, she is sucha fighter and she is my hero.

This is Haley Okines, a girl with the disease progeria, which makes you age 8 times faster then usual, she is sucha fighter and she is my hero.

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Hayley Okines, Campaigner of a Rare Premature Aging Disease Called Progeria, Dies at 17

Hayley Okines, Campaigner of a Rare Premature Aging Disease Called Progeria, Dies at 17

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Hayley Okines Dies at 17; Progeria Campaigner Charmed Prince Charles, Justin Bieber and More  Hayley Okines

Hayley Okines Dies at 17; Progeria Campaigner Charmed Prince Charles, Justin Bieber and More Hayley Okines

Hayley Okines, a teen who raised awareness for the rare genetic disease progeria, died this week. She was 17.

Hayley Okines, a teen who raised awareness for the rare genetic disease progeria, died this week. She was 17.

Fallece Hayley Okines, famosa adolescente con cuerpo de anciana

Fallece Hayley Okines, famosa adolescente con cuerpo de anciana

Hayley Okines - First Day at school, i cant believe shes almost 16! way to beat it harley!!

Hayley Okines - First Day at school, i cant believe shes almost 16! way to beat it harley!!

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