These three brothers all have Duchenne Muscular Dystrophy, which will rob them of their ability to walk and decrease their life expectancy to under 30 years each. #itsMYCAUSE #crowdfunding #RareDiseaseDay
Like most boys with Duchenne muscular dystrophy, Anthony wasn’t diagnosed until age 3. Children with DMD are usually wheelchair-dependent by adolescence and their life expectancy is only into their 20s. Watch Anthony’s story and learn how genetic carrier screening can impact families who are affected by this genetic condition. http://hubs.ly/H046r1g0
Jenna & her husband Clayton have recently found out their three boys Charlie, Hayden & Lockie have Duchenne's Muscular Dystrophy. We are raising funds to help them as the boys muscles deteriorate, leaving them wheelchair bound before their teens & with a life expectancy of 30 years.
This isn't a picture of me or my son, it's just the picture shown on the site from the Muscular Dystrophy Association. What you will find on this page, is a description of my oldest son's disease. He is my hero, and has taught me so much about grace, courage, and living life to its fullest. I will miss him so much when he's gone. Words fail to honor what his short life will mean to me.
Maickel Melamed, the last of more than 40,000 finishers, completed the Chicago Marathon in just under 17 hours. He has muscular dystrophy. At birth he was given a life expectancy of one week. "Your life is the most beautiful thing that could happen to you. Make the best with that."