Even my boyfriend still doesn't fully understand what a big deal this is on the rare times that I HAVE to struggle through my day in a sleepy-daze...

Even my boyfriend still doesn't fully understand what a big deal this is on the rare times that I HAVE to struggle through my day in a sleepy-daze...

Most of the time I am polite to everyone (I swear I am a nice person), but on my worse days, sometimes I just don't have the energy. One time I actually got called an ice queen (to my face), but honestly I was too tired and in too much pain to care.

Most of the time I am polite to everyone (I swear I am a nice person), but on my worse days, sometimes I just don't have the energy. One time I actually got called an ice queen (to my face), but honestly I was too tired and in too much pain to care.

YOU CAN'T HANDLE THE TRUTH. No one wants to hear we're still sick, so we say we're "OK" or "fine" #chronicillness

YOU CAN'T HANDLE THE TRUTH. No one wants to hear we're still sick, so we say we're "OK" or "fine" #chronicillness

Chronic Illness Cat - sleepover with chronically ill friend 8 am meds alarm, wave briefly at each other, go back to sleep until noon

Chronic Illness Cat - sleepover with chronically ill friend 8 am meds alarm, wave briefly at each other, go back to sleep until noon

I.V.'s are a nightmare as well. Usually end up w the head lab tech after they've tried themselves 5x's on each arm. As they apologize for killing you.  I feel like a pita.

I.V.'s are a nightmare as well. Usually end up w the head lab tech after they've tried themselves 5x's on each arm. As they apologize for killing you. I feel like a pita.

And in excruciating pain. Need husband's help to get out of bed and hobble to the bathroom.

And in excruciating pain. Need husband's help to get out of bed and hobble to the bathroom.

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