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Really wish people would stop invalidating how I feel by telling me I must be making it up because I seem fine.

It's more than just "like" my body is trying to kill me, my body IS trying to kill me on the inside. Lupus SLE is a frakking bitch! So is Fibro, RA, etc. Living with Chronic Pain is an endless nightmare of fear :(

96% of people with illness do not have any visible signs or use an assitive device (#invisible illness week)

Ready For The Big One Surf Invitations

of people with illness do not have any visible signs or use an assitive device (invisible illnesses).

It's a coping mechanism! Nobody really wants to know the truth. You can see their attention drifting when you actually start to explain how you really feel

When you live with chronic pain you never tell the truth. When someone asks you how you are or how you feel. You lie and say I'm fine. You lie & say, I'm fine or I'm ok, and smile.

Stop assuming!!! #justchronicillnessthings

People tell me to take natural minerals, noni juice, turmeric, and a host of other things to "cure" my autoimmune disease. I really wish they would sit down & face facts.

HA! Unless they have this disease or one like it, they DO NOT know! - https://www.facebook.com/photo.php?fbid=10153294914658537&set=a.10151330232438537.496567.606508536&type=1&theater

I hope they never will either.sad but true that is why we need to spread awareness to this rare disease Arnold Chiari Malformation 💜 Chiari Warrior's Life 💜

oh my god this is so true. Somedays you try to keep it together with people then others you just hope they get angry enough to leave you alone!

For any chronic illness . "I'm too busy fighting my own immune system to deal with your judgmental BS.

SO True. People don't even realize how lucky they really are to have jobs, social activities, the ability to shop, and outdoor time.

Life with Rheumatoid Arthritis, Auto-Immune Disease, Fibromyalgia/Chronic Illness, Pulmonary Sarcoidosis, Hyperaldosteronism.

Chronic pain - trying to describe.

Life with Rheumatoid Arthritis, Auto-Immune Disease, Fibromyalgia/Chronic Illness, Pulmonary Sarcoidosis, Hyperaldosteronism.

It hurts so much that I can't breathe. And I am about to give up... I am just not good enough...

Sometimes suffering is just suffering. It doesn't make you stronger. It doesn't build character. It only hurts.

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